About Us

Founded in 2017, our goal is to improve the lives of people and their families living with PHTS by funding research that will improve our understanding of the condition and support the development of potential treatments.

Beyond funding, we hope to also act as a catalyst to accelerate research progress by bringing together the world’s leading experts and breaking down barriers to collaboration. By working closely with the whole PHTS community and the pharmaceutical industry, we believe it is possible to achieve our mission of a targeted therapy for PHTS in the next 10 years.

Delivery of this mission is managed by a small PTEN Research Team based in the UK, held accountable by our Trustees, with expert oversight from a global Scientific Advisory Board.

Additional details about the charity can be found on the Charity Commission Register.